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    avi_cohen
    Participant

    My treatment is hard to get. 💊 How do people access specialty medications for rare diseases?

    Medication access for rare diseases

    Persist

    Route Detail
    Specialty pharmacy 💊 Managed delivery
    Insurance pre-approval 📄 Often required
    Patient assistance 🤝 Manufacturer programs
    Advocacy 🗣️ Orgs can help
    • Appeals if denied
    • Ask your care team
    • Don’t navigate alone

    How did you access your treatment? 💊

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