Rare diseases and insurance coverage

[linh_nguyen]

Costs add up with a rare condition. 💰 How do people navigate insurance for rare diseases?

Be organized

Challenge	Strategy
Costly treatments 💊	Prior authorization
Coverage gaps 🕳️	Appeals process
Patient assistance 🤝	Manufacturer programs
Advocacy 🗣️	Organizations help

• Keep records
• Get letters of medical necessity
• Ask about assistance programs

How do you manage rare disease costs? 💼

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